Professor of International Data Governance at TILT, Tilburg University
My research seeks to understand and integrate differerent perspectives worldwide on what constitutes just treatment through data technologies. I focus on how new sources of digital data are impacting governance, research on human and economic development, and political representation.
Today we are all experimental subjects. Digitisation has brought with it new and pervasive practices of research and experimentation, through the online and physical spaces we inhabit, the devices we use and our digital interactions with each other, with businesses and with the state. None of this is defined or governed as human subjects research: some practices clearly should be, while for others it is unclear. This project focuses on the urgent need to update both the definition and governance of human subjects research and experimentation for our digital age, by connecting currently separate fields of practice and ethical theory.